Thursday, May 26, 2016

Sweet Faces of Celiac Disease: Meet Ruby

Ruby is 13 years old and was diagnosed at the young age of   
11 months old with celiac disease.  
At what age were you or your child diagnosed with celiac disease?

11 months old

What symptoms were you or your child having before being diagnosed?

Throwing up, diarrhea, stopped eating and drinking, extremely tired ,weight loss, always crying...hospitalized with failure to thrive.

Any other family members diagnosed with celiac disease?


How has your life or your child's life changed since being diagnosed?

She is now happy healthy 13 year old. She is very positive about her lifestyle.She has only had a few negative days usually due to being glutened. I figured out early on that she has to eat often or she would get grouchy or even have a break down and cry. Not really sure why but still to this day she carries food with her and eats about every 2 hours even at school and sports. She also enjoys baking as well.

Ruby, you look so happy and healthy! Another sweet baby diagnosed very young. I'm happy to hear Ruby is doing well and enjoys baking! Have a wonderful summer and keep smiling! :)

Wednesday, May 25, 2016

Sweet Faces of Celiac Disease: Meet Chris

Chris is 15 years old and was diagnosed when he was 5 years old with celiac disease.

What symptoms was your child having before being diagnosed?

He began having bouts of really bad stomach aches. The last one Memorial Day weekend being so bad I thought maybe he had appendicitis.  Called the Doctor - that was ruled out on location of pain and we were asked to go in.  Several questions later and we found that the regular ice cream he had been enjoying (its only a summer thing at our 2nd home) was setting off the stomach aches.  Got blood-test and it was confirmed.  Once diagnosed, I learned that the splotchy skin he had was also a result of his CD.  He was also very pale but it was winter / early summer so I really didn't think much of it.

Any other family members diagnosed with celiac disease?

None that we are away of.  I was tested about two years before my son but it was negative.  I am super sensitive to wheat and dairy and just steer clear.

How has your child’s life changed since being diagnosed?

Chris is now a freshman in High School (15 in August) and still doing very well with his on his gluten-free diet.  He has learned to expand his taste and always willing to try new things.  I am so grateful and thankful he was diagnosed when he was and that the Doctor we saw was "on it".  He has grown from a scrawny skinny boy (who was always under percentiles in height and weight) to a 5'8 -140 lbs young man (who is now average in height and weight). The gluten-free world has come a long way with choices and flavors and eating out is not as difficult as it once was.  With all of our college visits for his sisters, we are learning that many accommodate a gluten free diet.  At High Point University they actually have a whole buffet dedicated to Gluten Free only!!!   

What advice would you offer a parent who’s child was just diagnosed with celiac disease?

Social Media!!!  This has been a great site to read and hear other stories.  I have shared several things on my page!!!

Oh man, I had an appendectomy in 2nd grade and I can still remember how bad it hurt!! I'm so happy to see Chris is doing well. And what great news to hear colleges actually know about the gluten-free lifestyle! That's very encouraging! Best wishes to Chris and enjoy         your summer! 

Tuesday, May 24, 2016

Sweet Faces of Celiac Disease: Meet Cole and Ella

Ella was diagnosed at 7 years old with celiac disease. Her brother,       Cole followed, and was diagnosed at 8 years old. They're now 9 1/2       and 10 1/2 years old.

What symptoms were your children having before being diagnosed?

Cole had headaches, body aches, constipation, stomach aches, asthma and ear infections.  The stomach aches were the last symptom to appear.  

Ella was very lethargic, vomiting, loose stools, very large tonsils that were removed and stomach aches. 

Both has somewhat distended bellies as toddlers but I just thought that was how they were built, looking back. She also has had chronic low iron. It was the kids stomach aches that prompted us to seek medical advice.  They both are also borderline ADD.

Any other family members diagnosed with celiac disease?

No.  Mom and dad both tested, maternal grandmother, maternal aunt, and 1st cousins, paternal - have been tested.  No genetic testing has been done, yet.

How has their lives changed since being diagnosed?

They both are 100% gluten free. 

Ella was most uncomfortable with the stomach aches so I had her looked at 1st.  I had heard of CD  and asked the Dr. if it was possible that she could have this.  After looking at her symptoms/history he said, no, I really don't think it's that.  I insisted that she be tested for it.  When we went back for the results he was shocked!  He associated CD with, "failure to thrive" and since she grew (slowly) he didn't think she was a candidate.  Ella underwent a endoscopy after her blood was tested and found she had the "classic tile floor"-her villi were destroyed. 

We had Cole blood tested shortly after and his IgA levels were even higher than his sisters.  Cole didn't have to have the endoscopy.  Since being diagnosed life has changed dramatically.   Ella's energy returned and stomach aches stopped.  Her digestive issues resolved and she no longer runs to the bathroom during meals.  Cole's body aches/headaches resolved and the constipation got better but is still something we work on with drinking enough water.  He does get occasional migraines which I'm not sure is related or not?  His dad has asthma so I'm not sure if that was CD related or not.  

My kids are very aware of what they eat as they don't want to feel those horrible stomach aches.  They pack food to almost everywhere they go, we rarely dine out unless we are sure they will be safe.  They can not buy school lunches as our district has not introduced a safe GF meal option.  They did try but Cole got sick after pizza school served.  I have not seen it on the menu since as I think they discontinued it.  We would never try that again.  Cole is vocal about his restrictions where as my daughter does not want attention drawn to it.

What advice would you offer to a parent who’s child was just diagnosed with celiac disease?

Research!  I've spent countless hours on-line reading and chatting with others, it really does help.  Be vocal, let family and friends know what is going on and educate them as much as possible.  Cross-contamination was the biggest thing people didn't understand.  Some parents are still afraid to have the kids over when a meal or a sleepover is involved but I reassure them to call me with any questions and offer to send food with them.  Replace all the kitchen items that have been glutened.  Get the entire family on the GF diet - it won't hurt anyone and it reduces the risk of cross-contamination.  They take a multivitamin, vitamin C supplement, Fiber supplement and probiotics.

WOW, way to be persistent Mom! We it comes to our children's health, we have to take action and go with our gut! Thank you for sharing their stories and showing others that siblings can have very different symptoms. When a family member tests positive for celiac disease, immediate family members should get tested as well! I'm happy they have each other on this journey together. As they grow and have families of their own one day, they will appreciate it even more. Best to you, Ella and Cole!! I'm so happy they are feeling so much better. Have a great summer!! 

Friday, May 20, 2016

Beanfields Chips: Gluten-Free, Vegan and NON-GMO

Another Friday in the month of May, means a another GIVEAWAY           for Celiac Awareness Month!

I couldn't have a giveaway without sharing Beanfields NEW Flavors             with you! 

Jalapeno Nacho 
Fiery and cheesy flavor will excite your taste buds!

White Bean with Sea Salt
Golden in color, these chips give your traditional tortilla chip a run for their money! 

Black Bean with Sea Salt
If you LOVE Black Beans, you'll love this chip! A dramatic twist, but so delicious!

If you aren't familiar with Beanfields Rice and Bean Chips already, they are gluten-free certified, vegan, NONGMO and FULL OF FLAVOR!

Rice and Bean Chips are great for graduation parties, snack time, cook-outs, taco night, girls night, whatever it may be!

From salsa, hummus and queso for dipping or making a heaping pile of your favorite nachos, Beanfields has a variety of delicious Rice & Bean Chips to choose from!




a Rafflecopter giveaway

For more on their products, please visit their website: Beanfields