Monday, May 12, 2014

Sweet Faces of Celiac Disease: Meet Aydia

Aydia is 4 yrs. old and was diagnosed with celiac disease   when she was 2 yrs. old.

What symptoms was your child having before being diagnosed?

Mushy stools and protruded belly. We didn't think much of this at the time. At her two-year doctor visit she had not gained any weight. I wasn't too worried about this at the time either.  Then...all of a sudden...she would vomit. It became almost a daily occurrence and it was very puzzling because she would vomit and then play a half-hour later. Everyone has different symptoms, but I can honestly say that because she vomited so often that it was clear something was wrong. She would also be VERY irritable after her afternoon nap. Sometimes she would be inconsolable for an hour or more. It was very challenging to deal with - we didn't know why it was happening.

Any other family members diagnosed with celiac disease?


How has your child's life changed since being diagnosed?

She's healthy and thriving. She has adapted well and even asks if certain foods are gluten free.  It is hard at times as we need to be so careful...but we have adapted.

Being that 83% of those with celiac disease are UNDIAGNOSED, what are some ways we can encourage more awareness of the disease and its multiple symptoms?

I think if anyone experiences any type of prolonged gastro issues...Celiac should automatically be included in blood work. I have also found that even some medical professionals don't have an understanding of Celiac. My daughter's pediatrician was aware of celiac...but maybe had one other patient.  Even she didn't think my daughter had celiac disease and she was shocked with the results. I think because symptoms vary so much...broad education is the key...even in the medical world.

Aydia, what a doll! Enthusiastic about being gluten-free, that's what I like to see! That's right, it's not a fad, celiac disease and gluten-free living is for life. Keep eating healthy gluten-free foods Aydia! Thanks Mom for sharing Aydia's story with us. It's quite similar to Jack's story - he was also diagnosed after visiting the pediatrician for his 2-year well check.

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