What symptoms were you or your child having before being diagnosed?
Constipation, otherwise nothing. Was growing well, no concerns. I had the children and myself screened solely because I have type 1 diabetes and there is a high incidence of celiac among people with type 1. Her ttg IgA was 12 times the normal range and endoscopy with biopsy showed damage in 4 of 5 sampled areas.
Any other family members diagnosed with celiac disease?
No.
How has your life or your child's life changed since being diagnosed?
Since Bailey was largely symptom free except for frequent constipation, there hasn't been any noticeable change. She no longer wakes in the night crying as she sometimes did, but she does still struggle with regularity in terms of her bowels. Her GI said that it could take months before that changes. We are almost 8 months from diagnosis.We didn't eat out a lot before, but now we eat out very rarely. I experiment more in the kitchen now to make things she will like.
Being that 83% of those with celiac disease are UNDIAGNOSED, what are some ways we can encourage more awareness of the disease and its multiple symptoms?
I believe we have undiagnosed family members who don't want to know if they have it or not because they fear the dietary restrictions. My daughter still gets lots of great foods. I can't think of anything we haven't found a decent substitute for. Don't fear the diet. Look forward to feeling better instead.
Thank you Mom for sharing Bailey's story with us. She's such a cutie! It goes to show, that not every child has the typical symptoms of celiac disease.
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