Wednesday, May 4, 2016

Sweet Faces of Celiac Disease: Meet Samantha

Samantha is 9 yrs. old and was diagnosed with celiac disease   at 6 yrs. old. 

At what age were you or your child diagnosed with celiac disease?

6 yrs. old

What symptoms were you or your child having before being diagnosed?

Samantha was having daily tummy aches.  She also had some pretty severe brain fog.

Any other family members diagnosed with celiac disease?

All immediate family tested - none of us came up positive for Celiac Disease.

How has your life or your child's life changed since being diagnosed?

Our lives have changed dramatically.  We made our whole house gluten free.  I (Sam's mom) advocate for her in every way I possibly can and am very vocal about her disease.

Being that 83% of those with celiac disease are UNDIAGNOSED, what are some ways we can encourage more awareness of the disease and its multiple symptoms?

Last year Samantha had a lemonade stand that raised over $700 that she wanted to put towards funding a walk in our area to raise money for a cure.  So this year we held the Making Tracks for Celiacs NH 5k Run/Walk and Vendor fair on May 10th and raised over $15,000 for the Center for Celiac Research & Treatment at Massachusetts General Hospital and raised awareness in doing so!  Her diagnosis has definitely taken a quiet/shy family and made us come out of our shell!

WOW Mom!! You must be proud of your young lady! Seeing Samantha embrace her celiac disease together with her family and raising awareness in her community is AWESOME!! Keep doing amazing things! 

1 comment:

  1. This is amazing! Keep up the good work Samantha!! If you need any help in your ventures, I would be more than happy to lend a hand. Contact me at We are a nonprofit from Wisconsin helping Celiac kids. :)