Tuesday, June 13, 2017

Sweet Faces of Celiac Disease: Meet Claire

Claire is 14 years old and 
was diagnosed with celiac 
disease when she was 
11 years old.

At what age was your child diagnosed with celiac disease?

11 years old

What symptoms was your child having before being diagnosed?

Claire had chronic strep throat even after we had her tonsils out.  She had brain shivers or as she describes as dizziness. She passed out at school and hit her head. She also suffered from low iron and had vitamin D deficiency and had trouble sleeping.  She is missing 5 adult teeth (could be hereditary) and her adult teeth came in very late.  There were no gastrointestinal problems.

Any other family members diagnosed with celiac disease?

2nd Cousin

How has your child’s life changed since being diagnosed?

She is almost never sick. So much happier and healthier.  More energy and her blood work and vitamin levels have all been normal.

What advice would you offer a parent who’s child was just diagnosed with celiac disease?

It is totally manageable. Join a support group.  Get online and research and empower yourself.  Take it seriously. No cheating ever and get a Nima Sensor.  Never apologize for asking a million questions when you are eating.

Claire, you look beautiful! I'm so happy to hear you are feeling so much better. Asymptomatic symptoms like yours are often overlooked, so thank you for sharing your story.

No comments:

Post a Comment