Thursday, September 7, 2017

Sweet Faces of Celiac Disease: Meet Lilly

Lilly is 9 years old and was 
diagnosed with celiac disease 
when she was 5 years old.

What symptoms was your child having before being diagnosed?

Distended stomach, stomach pains, major fatigue, low hemoglobin levels (.1 away from needing a blood transfusion!), headaches, leg tingles (pins & needles from her knee to her ankle).

Any other family members diagnosed with celiac disease?

No

How has your child’s life changed since being diagnosed?

Lilly has grown so much in height and weight (6 inches and 12 pounds in just the first year!) that she is on the charts solidly, now (25-30% for both).

What advice would you offer a parent who’s child was just diagnosed with celiac disease?

Speak with a GI nutritionist if you can, the one we met with at CHOP was so wonderful! Also, reach out to support groups, there's so much helpful info to be shared amongst parents!

Lilly it's great to see you smiling and hear you are growing!! 

Have a great school year kiddo!

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